Beyond Suffering for the next generation
a study guide
Excerpts used with permission from Beyond Suffering For the Next Generation Study Guide (c) 2015 All Right Reserved by Joni & Friends Inc.
Upon meeting Shaw Bates, it may not be immediately obvious that he has a disability. He has what is called a “hidden disability”—in his case, a learning disability. What will become readily apparent is that Shaw has a passion for ministering to people affected by disabilities, and that he is deeply committed to seeking and fulfilling God’s plan for his own life. He finds comfort and encouragement from the biblical example of Moses, through whom God worked mightily despite Moses’ speech impediment. If God could powerfully use Moses, Shaw reasons, then he can use me too—learning disability and all.
When I was 5 years old, my parents took me back to San Diego Regional Center to get tested by doctors. Due to my delay in development of major and minor motor skills, I was already seeing a speech and occupational therapist and crawling around on a scooter. The doctors would put peanut butter on my upper lip so I had to lick it off. When they had me draw stick figures with my right hand, I drew them big and right side up. But with my left hand, I drew the stick figures upside down and very small. The doctors and my parents were amazed and scratching their heads because of how I drew the stick figures. The doctors said that I could not learn and that there was no hope for me to ever learn. I even had teachers tell me that I could not learn. Besides my disabilities, another painful part of my early childhood occurred when my parents got a divorce.
Shaw Bates has a goal - To help people with disabilities to live independent and successful lives."I will create an educational work shop to inform the community about the challenges that people with disabilities face in college and the work place, and potential solutions." Shaw is hosting a Toastmaster conference titled "Overcoming with a Disability". Please see the invitation below.
TITLE: "Overcoming with a Disability"
SPEAKERS: John Kuwaye, Randy Costello, Cody Santiago
PANEL: Shaw Bates, Randy Costello, Cody Santiago
WHEN: Saturday, Feb. 10, 2018 8:30am - 12:pm
WHERE: Koko Head Elementary School 189 Lunalilo Home Rd, Honolulu, HI 96825
8:45am Introductions by Shaw Bates - Listen & read Pastor Danny Yamashiro interview with Shaw Bates
9:00am John Kuwaye - Abilities Unlimited, first as a client then as a Direct Support Worker, Mobility Trainer and Job Coach for 5 years.
9:30am Randy Castello - School Teacher - Assets School, lst & 2nd grades for dyslexic, gifted and ADD/ADHD children
10:30am Cody Santiago - see KHON TV news story on Disabilities Awareness Month with Cody Santiago
11am - Panel Discussion moderated by Maunakea
GOAL: Shaw Bates - To help people with disabilities to live independent and successful lives. I will create an educational work shop to inform the community about the challenges that people with disabilities face in college and the work place, and potential solutions.
Panel (L-R) Shaw Bates, Randy Costello, Cody Santiago
ABC News Genevieve Shaw Brown Jun 16, 2017 Genevieve Shaw Brown Jun 16, 2017 - Morgan’s Inspiration Island overlooks the theme park’s 8-acre catch-and-release fishing lake. The focal point is a seven-story lighthouse with a rotating beacon on top. Six major elements – including Calypso Cove, a water music garden splash pad and Shipwreck Island splash pad, which includes an accessible pirate ship with a giant dumping water bucket on top -- comprise the $17 million tropically themed island paradise inspired by Hartman and his wife Maggie’s 23-year-old daughter with special needs, Morgan.
Adrea Gibbs, IAAPA MemberIAAPA Member - There are many exciting and entertaining theme parks, but Morgan's Wonderland is a park with a special mission. As the first fully accessible theme park of its kind in the world, Morgan's Wonderland was awarded Trip Advisor's 2015 Travelers' Choice Award as one of the Top 25 Amusement Parks in the United States.
A Family's Dream Comes to Life
Opened in 2010 in San Antonio, Texas, Morgan's Wonderland is the first completely wheelchair-accessible theme part in the world. From the rides to the attractions to the entertainment, this park is the amazing result of the dreams of Gordon and Maggie Hartmann, whose daughter Morgan has physical and cognitive challenges. Morgan's indomitable spirit serves as the park's inspiration.
Honolulu, Hawaii, May 6, 2015 - Hawaii Governor David Ige made Hawaii the first state in the nation that mandates movie theatres statewide to accommodate hearing and visually impaired customers.
HB1272 takes effect Jan. 1, 2016 and requires motion picture theater operators with more than two locations in the state to provide open captioning during at least two showings per week of each motion picture that is produced with open movie captioning. The bill also requires theatres to provide audio description of any movie produced with audio description.
Realizing the STOVE IS ON! Do I go back home - will I get home in time - call the neighbors - hope they're home - oh noooo, they dont have the key - WHAT CAN I DO?!?
Helps people with learning difficulties, such as dyslexia: Improves your reading, comprehension, spelling skills and concentration by listening to the text while reading.
Helps people for proofreading: Not only can help you to pick out mistakes, but also can give you a good sense of the natural flow of what you have written.
Helps people with vision problems or reading load: Just sit back, relax, and let NaturalReader read to you. Reading is no longer stressful but is now enjoyable.
Helps people learning foreign languages: Allows you to practice listening and pronunciation with natural-sounding voices of multiple languages.
Deana Copeland (right) fears that a new provision of the Affordable Care Act (ACA) would eliminate her as the caregiver of her 22 year old daughter, Andrea Hood, who has cerebral palsy, spina bifida and autonomic dysreflexia.
ABLE Act, Bill # H.R.647 is Now the Law
The Achieving a Better Life Experience (ABLE) Act of 2013 (H.R. 647) establishes tax-free savings accounts (modeled after 529 college accounts) and allows families to create tax free accounts to help individuals with disabilities pay for essential services such as medical care, housing, transportation, assistive technology, job training, education personal support services, health, prevention and wellness, financial management and administrative services, legal fees, expenses for oversight and monitoring, funeral and burial expenses, and other approved expenses.
Good News and Bad News
The good news, Sovaldi is a breakthrough drug treatment for hepatitis C. Unlike traditional treatments for hepatitis C, Sovaldi can cure more than 90 percent of patients in a few months. More than 130 million people across the globe have been hoping and praying for this kind of cure. Gilead Sciences in Foster City, which makes the drug Sovaldi, won approval from the Food and Drug Administration in December.
Washington Post Travel July 25 2013 By Carole Zoom "...I’d been to China once before, in 1988, as part of a Mobility International USA delegation to meet with leaders in the growing disability rights movement. Twenty-five years later, I would discover that although China has undergone enormous changes in accessibility, it still has a long way to go to be truly accessible to everyone. But it’s still more than worth the hassle."
Your future depends on planning as soon as possible. It doesn't have to be a perfect plan, it just has to be a plan that lets you know where you want to be. You can always make adjustments to adapt to the uncertainties of life. Planning makes it easier.
We all want the best of all worlds but how do we recognize opportunities when it sneaks up on us? Questions, questions, questions....fortunately AppleRED is here to provide personalized, one on one help. (click Read More below)
Heart-wear is born from hard work, love and a desire to “do something about it”
(Honolulu, Hawaii USA – Nov 5, 2013) While working two jobs, one with an international airlines & the other for a famous US restaurant, Derika Tamura always had a burning desire to be a fashion designer. As a national championship soccer player she developed fortitude & determination. In the Cover Girl and Young Miss magazine competitions she learned poise under pressure. Even as a student majoring in religion & mathematics, she pinched pennies to visit businesses in different countries to understand the nuances of the global fashion world. Where to buy fabrics? Who does fabric art? Where are the quality manufacturers?
<I realized what a fun kinda place this is as soon as I walked through the door.
"Hi c'mon in, what-kin-I-get-cha?" the gal behind the bar beamed.
In a single step I left the real world and was now at what was to become my favorite watering hole. No need to walk deep into this eatery to quench my thirst. First things first, one step, place my drink order, second step, I'm at my seat. Slurp...ahhhh, now onto the food.
A couple more steps and I'm sitting under an umbrella on the water, a gentle breeze and a happy group arriving by boat for lunch. Is this paradise or what?
October is Anti-Bullying month, and this special puppet show combines sign language, fun and a great message.
Marianne Ambrose aka Marianne of Waikiki has a remarkable show "Rabbit Acts of Kindness", which combines a puppet show with lessons of compassion and sign language. Read more to see the video.
The following is a letter to Pacific Business News detailing my support of one of this chamber's directors for the prestigious 2013 Business Leadership Hawaii – Best in Small Business (up to 40 full time employees) Award. The letter reveals leadership virtues that are often mistaken as skills by the untrained eye.
Humans can now move robotic limbs using only their thoughts and in some cases even get sensory feedback from their robotic hands. Scott Pelley reports.
Exerpts from Alzheimer's Foundation of America
Alzheimer's is a type of dementia with symptoms that begin with the erosion of memory, thinking and behavior. Slowly getting worse over time, patients lose the ability to coordinate basic motor skills such as swallowing & walking. Doctors say it could damage the parts of the brain that control breathing.
According to the National Vital Statistics Report (Oct. 10 2012) it is now the 6th leading cause of death. Projections show that nearly half of all persons over the age of 65 in Hawaii will have the disease. Alzheimer's also affects up to 5 percent of people in their 40s and 50s.
Page 1 of 2